Military Photographer of the Year Winner 1998 Title: Dying Girl Visits School Category: Picture Story Place: Second Picture StoryThe world outside her home fascinates her, but Katie Mahar, a 5-year-old Poughkeepsie, , girl who was struck with a rare genetic disease at birth called xeroderma pigmentosum, will never fully experience it. The sun is her enemy, and as a result, she spends her day inside the confines of her home. The chance of surviving past teen years is nil. What others consider normal is a special treat for Katie: visiting the local school. She does it once every two weeks fo

Military Photographer of the Year Winner 1998 Title: Dying Girl Visits School Category: Picture Story Place: Second Picture StoryThe world outside her home fascinates her, but Katie Mahar, a 5-year-old Poughkeepsie, , girl who was struck with a rare genetic disease at birth called xeroderma pigmentosum, will never fully experience it. The sun is her enemy, and as a result, she spends her day inside the confines of her home. The chance of surviving past teen years is nil. What others consider normal is a special treat for Katie: visiting the local school. She does it once every two weeks for a 45-minute period in a darkened and guarded gymnasium. "I like going to school," she admits,.... [Complete] Scene Caption: Military Photographer of the Year Winner 1998 Title: Dying Girl Visits School Category: Picture Story Place: Second Picture StoryThe world outside her home fascinates her, but Katie Mahar, a 5-year-old Poughkeepsie, , girl who was struck with a rare genetic disease at birth called xeroderma pigmentosum, will never fully experience it. The sun is her enemy, and as a result, she spends her day inside the confines of her home. The chance of surviving past teen years is nil. What others consider normal is a special treat for Katie: visiting the local school. She does it once every two weeks for a 45-minute period in a darkened and guarded gymnasium. "I like going to school," she admits, in a voice mysteriously void of a full understanding of the dark future looming before her. (Story shot while at Syracuse University as an official school project. Country: Unknown

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